- 31/03/2025
- Posted by: Amanda Hack MP
- Category: News
Campaign Calls for an End to the Postcode Lottery for Coeliac Health
Coeliac UK and supporters delivered a petition with over 20,000 signatures to Downing Street, backing calls for wider access to ‘gluten-free’ prescriptions across the UK. This follows the recent decision by the Leicester, Leicestershire and Rutland Integrated Care Board to end ‘gluten free’ prescriptions across the area.
This support is essential in helping those with Coeliac disease manage their illness and maintain a healthy lifestyle, preventing future health problems or complications. Research by Coeliac UK suggests that a full weekly shop suitable for a gluten free diet can be 35% more expensive than a standard shop.
After delivering the petition, Amanda Hack said:
“Speaking with Coeliac UK and knowing how expensive it is to manage a restricted diet, we must put an end to the postcode lottery for people who are coeliac. Different areas around the country have varying levels of support available, this is just unacceptable.
I am worried about the decision by Leicester, Leicestershire, and Rutland Integrated Care Board’s to stop providing prescriptions. Focussing on dietary advice is of limited help if patients cannot afford the food they rely on to stay well. This has a wider impact on our local health services with people requiring medical support caused by not eating a gluten free diet.
The petition delivered to Downing Street shows the strength of feeling from those living with Coeliac disease, including people from Leicestershire, and I will continue to back calls to end this lottery which blights our health system.”
Coeliac UK said:
“Our campaign to end the postcode lottery of gluten free prescriptions has reached an important milestone. This week, with supporters from across the country, we took your message directly to Number 10 Downing Street and the UK Government!
Leading the way at the petition hand-in were Kate Powell from Waterlooville, Hampshire, who has two daughters with coeliac disease, Ceira Reading from Leicestershire and Anita Patel all sharing their personal experiences and highlighting how critical this issue is to families affected by coeliac disease.
Among the politicians showing their support were Baroness Bakewell of Hardington Mandeville, Tom Rutland MP, Sharon Hodgson MP and Amanda Hack MP further reinforcing the message that gluten free prescriptions are essential for managing coeliac disease. Following the hand-in, we will keep the entire community informed every step of the way as we look to work with the Minister and his team to implement much-needed change. ”
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This week is National Road Safety Week!
Right across North West Leicestershire, I’ve heard from many residents about concerns over speeding, dangerous driving, and pedestrian safety, especially around schools and busy junctions.
I've already worked with the local community in Griffydam to press Leicestershire County Council into taking action on a road junction, a crossing assessment outside the local school, and to conduct speed surveys in the area. That's alongside working closely with local councillors and the police in Castle Donington and Kegworth around measures that can be, and are being taken, to combat the car cruising we see in the area, and that's just a snapshot of some of the work locally!
Road safety isn’t just a transport issue though. It’s about protecting lives, supporting families, and making sure everyone feels confident using our streets.
I’m proud that Labour’s upcoming Road Safety Strategy will focus on delivering safer roads for everyone.
You can find out more about Road Safety Week and get support if you've been impacted by an incident by visiting: www.brake.org.uk/road-safety-week
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I recently spoke with Simon Dunn from the British Heart Foundation as part of The Defib Dash. Simon looks after The Circuit which is the National defib registry for the UK. www.defibfinder.uk/
Simon spoke to me about what happens when you find yourself in an emrgency situation and what you can expect when you call 999.
The aim of the Defib Dash isn’t just to highlight where defibs are missing, but to get all of us thinking about a few key questions:
Do you know how far away your nearest defibrillator is?
Could someone get to it quickly in an emergency?
Where else in the community might one be needed most?
Don't forget to 'Dash' to your nearest defib this week and submit your findings here: www.amandahack.com/campaigns/defib-dash-submission/
Got questions? Have a read of all the FAQs here: www.amandahack.com/defib-dash-faqs/
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